Article 177. Provision of medical care for orphan diseases Code on the Health of the People and the Healthcare System of the Republic of Kazakhstan

Home / RLA / Article 177. Provision of medical care for orphan diseases Code on the Health of the People and the Healthcare System of the Republic of Kazakhstan

1. Orphan (rare) diseases include rare serious illnesses that threaten a person's life or lead to disability, the frequency of which does not exceed an officially defined level.

2. Orphan diseases are treated within the guaranteed scope of free medical care.

Provision of medicines for the treatment of orphan diseases is carried out within the guaranteed volume of free medical care and at the expense of other sources in accordance with the procedure determined by the authorized body.

3. The list of orphan diseases and medicines for their treatment (orphan) is approved by the authorized body taking into account the following criteria:

1) prevalence in the Republic of Kazakhstan;

2) the need for systematic treatment, for which there are medicines developed and registered in the territory of the Republic of Kazakhstan (curable patients);

3) the need for systematic treatment using medicines that have been developed and are available in the world, but are not registered for use in the territory of the Republic of Kazakhstan;

4) the presence of diseases for which there are no developed medicines in the world.;

5) the need for palliative care due to the lack of radical therapy (incurable patients).

4. The rules for forming the list of orphan diseases and medicines for their treatment are approved by the authorized body.

President

Republic of Kazakhstan

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